
Today is Fibromyalgia/Chronic Fatigue Syndrome (myalgic encephalomyelitis) Awareness Day, though relatively unknown, a lot of people suffer from one or both of these chronic illnesses. I was diagnosed a year and half ago with both, and while it is comforting to have a reason for what I was feeling, it is not fun. It is hard to explain what it feels like to have your whole body hurt. Or being called lazy for not being able to get out of bed. It isn't that I don't want to, it is just that I feel like I am laying under a ton of bricks and cannot move. When I first started blogging I thought I would keep the fact that I suffer from FM/ME to myself. But as I became more involved in Twitter and other social media, I realized that it is a great comfort to have people out there who, unfortunately, can relate. Being that it is FM/CFS/ME International Awareness Day, I thought I would do my part and share my story.
I have always been tired and have always had trouble sleeping. I just thought it was the way I was built, but people could never understand why I was always tired. Or why my back, neck & knees would hurt (not to mention elbows and hips). "Head, shoulders, knees & toes" is not a childrens song for me, but a list of all the places that I hurt. I couldn't understand how people could wake up in the morning feeling "refreshed." I never once knew what that felt like. It has always been a struggle for me to get out of bed in the morning. And, as tired as I am, it takes forever for me to fall asleep. Add panic & anxiety disorder plus ADD to the mix and you're in for one helluva ride! Well, over time I've learned to deal with the anxiety and ADD and hopefully I'll be able to deal with the pain and fatigue soon also. It is not fun to feel like an old lady when one is only in her mid-thirties. It is hard to explain certain sensitivities too. I am more sensitive to touch and smell, heat and cold. I hope this post helps those who don't have it understand and be able to sympathize; and for those who do, I truly empathize.